The term polycystic ovary syndrome (PCOS) implies the existence of multiple ovarian cysts, but the name of this illness isn’t entirely accurate. To combat this confusion and perhaps encourage more targeted research into PCOS, a panel formed by the National Institutes of Health has suggested a name change.
Terminology may seem like a minor issue, but according to the panel’s doctors, in this case the name of the disorder has hindered progress in research, as well as people’s understanding of what PCOS truly is. According to Dr. Robert A. Rizza, this confusion can be solved in part by assigning the syndrome a new name that “reflects the complex interactions that characterize the syndrome.”
The point Dr. Rizza makes here is very accurate, particularly when you consider that PCOS is actually a hormone disorder that manifests with multiple symptoms beyond the appearance of cysts. Women with PCOS suffer from fertility issues and experience irregular periods, along with all of the other symptoms hormone imbalances can create, including excessive hair growth and acne.
PCOS has also been linked to diabetes and high blood pressure, making this rather common issue one that can be dangerous to a woman’s overall health. Unfortunately, the reason for these links– and indeed the cause of PCOS itself – hasn’t yet been identified. The panel believes that the imprecise and misleading name of PCOS contributes to this.
Another issue the panel raised is that of establishing strong criteria for diagnosis. At present, three divergent systems are used in diagnosing PCOS. The hope is that a new name for the syndrome will lead to established diagnostic criteria, making it easier to research the causes and potential treatments. The proposed solution, as stated by panelist Dr. Timothy Johnson, is to use the Rotterdam criteria (one of the three currently accepted models), but adjust it so that the criteria are, “clearly defined and have normal ranges established across age groups and populations.”
Assuming the National Institutes of Health accept the panel’s recommendation, the syndrome’s new name will hopefully raise awareness of the issue, particularly the fact that ovarian cysts are only one symptom of this very complex disorder. In turn, that awareness could prompt more research as well as promoting patient education, so that women suffering from PCOS can better participate in their own care.
If you have PCOS, or have experienced the symptoms of this hormone-based disorder, contact one of our Florida clinics today.
